Tuesday, May 14, 2013

Radiation is done, on to chemo

So I met with the Sarcoma Surgeon last week. He said he could operate on the tumor in my abdomen but because it abuts my right kidney he'd have to take that out too. He recommended against the surgery since I would need my kidney to fight off the toxicity of chemo.
I met with my Oncologist the next day. I am approved to start the drug Afinitor (Everolimus). There is currently a clinical trial at Emory University using Afinitor plus a second new drug under research. I will find out on May 20 if I can start the trail. The thought being two drugs have a better chance than one. If I can't get into the trail  in a timely manner, I'll start the Afinitor on my own next week.
Thursday I go for my 3 month CT scan. Let's see what's going on in my abdomen and how much larger that tumor has grown off chemo.

Monday, May 6, 2013

Sarcoma treatment update

The month of April I've had radiation to the chest mass near my heart everyday for 20 days. The only side effect I've felt is some skin burning and peeling on my back like a bad sunburn. I go for 3 more stereotactic treatments to the other lung mass starting this week. After radiation, we'll concentrate on my abdominal masses. I have an appointment tomorrow to meet with a Sarcoma Surgeon to discuss my options for surgery. Wednesday I meet with my Oncologist to get her opinion and plan from here. I know she has a few different chemo's in mind to try. Since my cancer is systemic and not all of it operable, I know I will have to do chemo, but it's such a "crap shoot". No guarantee it will work but with side effects that wreak havoc on your body. I'm hoping surgery is an option for these new masses. We'll know after tomorrow.