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Showing posts with label RollerCoaster. Show all posts
Showing posts with label RollerCoaster. Show all posts

Tuesday, August 9, 2011

true confessions of a cancer patient

I didn't think of myself as a "patient" until recently. I thought I was a survivor, hoping I was done with the worst of it. But then in June, the recurrence came and took me by surprise. I really have to say, I never once thought "cancer" when I went to the Emergency Room with symptoms. Naive maybe? 
So, I had my second abdominal cancer surgery. This one was tougher to heal from, probably because of the vertical incision and also because they took out 8" of my colon. I'm 7 weeks post-op today and still feel the tenderness of the incision, and the effects on my bladder and bowel. For the most part I feel good, but I haven't really done anything too physical yet. It's been a hot, hot, hot summer and not conducive to getting outside and exercising. The most I've done is walked. 
This time has been tougher emotionally too. My cancer is back, at the primary site, which means they didn't get it all. My doctors have told me that fighting this cancer will be a chronic problem. Sarcoma is a %#*! awful disease. Invasive and fast growing. I've done my research. I get all my reports and CT scans and pathology reports to keep, and I've read all of it. It's difficult to read that the pathologist has written "this patient has a poor prognosis" or the surgeon writing " This patient is at a high risk for a recurrence". 
So when the doctors started talking radiation, I knew I didn't have a choice but to do it. I admitted that I haven't been afraid of any of my surgeries, I've gone into them with confidence, but this is different. I'm scared. I went for my treatment staging today. The nurse was going over a few things and wanted me to sign some paperwork. She read it over with me... the possible short term and long term side effects... I couldn't sign it. I lost it and started tearing up... she said she'd have the Doctor come in and go over things again with me. I admit, I was a bit embarrassed, but my Radiation Oncologist has such a good "bedside manner" that he explained it all and calmed me down, and I signed the paperwork. 
After that I met with the CT Tech who set me up on the table and built a hard foam cushion for my legs so that I would be in the same exact position every time. He tattooed my hips and abdomen with 3 small dots so they could align the beam to be the same every time also. (It didn't really hurt, the tattoo needle, if I weren't already so marked with scars, I may think about getting one. Not really!) Next week, we'll have a run through before they hit me with the actual beam. There's a lot of calculations and measuring that will go on between now and then. 
I'll go every weekday for the next 6 weeks, the same time each day, for a 7-12 minute blast. I'll take an anti-nausea med before each treatment, since that's a common side effect. The hope is to rid my pelvis of any remaining cancer cells, and never have to have another surgery down there. 
Hoping and praying this works. 





Wednesday, November 18, 2009

the planner in me is relieved

Who likes the unknown, anybody?! I for one am a planner and I like to know what's going on next.

I have a date set for my thoracic surgery... November 30. It's a good date, I think... after Thanksgiving but enough before Christmas that I'll be okay.
I now have 10 days to decorate for Christmas... but not really because tomorrow I'm painting my husband's office, so that leaves 9 days, but not really because next Tuesday I have to pick up my Mom at the airport and have the family over for dinner, so that leaves 8... (I already took the day off for Thanksgiving), but somehow it will all come together and be festive and beautiful.
The "roller coaster" is riding level, not up or down, but straight ahead. Somehow I feel blessed.


Thursday, November 12, 2009

my emotions are on a roller coaster

I have no hormones... so it's not that.
One moment I'm up and positive and normal... the next I'm on the brink of sadness and tears.

It's the evil C, damn it. It makes everything up in the air. No planning, just yet, because you don't know what you'll be doing next month. Getting ready for Christmas, planning a baby shower...
or recuperating from surgery.
So it's day by day, and I want to make the most of each day.
Now I know where the "livestrong" slogan came from... with cancer you must be strong and live your life... no sadness, just strength and hope.
And I do have strength and hope... so I'll be okay. Just a low point on the roller coaster... but it goes back up again, right?!