Gingerbread tradition continues

In December 2010, I wrote about our Gingerbread House party tradition. Well this year, while Nathan was visiting for Thanksgiving, we started the tradition for this next generation. The boys were a bit young at 2.75 and 1.5, but we all had fun anyway. They mostly wanted to eat the cereal, raisins and candy, so the Moms helped out a lot!
I have photos to post and will be back soon to do that!

Back on chemo

I had a CT scan last month in November, after being off chemo for 4 months, due to the Shingles. The scan was not good news. My four lung nodules have all grown, my prior radiated chest lymph node is showing activity again, and I have a new mass in my abdomen near my liver. That was the most shocking to me, a new mass. 
I met with Dr. Movva, my Emory Onc and she gave me the bad news. We talked about different chemo drugs and she thought Sutent would be a good one to start. By the time I had all the pre-tests to start the drug, I already had an appointment with my new oncologist, Dr. Gina D'Amato. (Dr. Movva has since moved on to Fox Chase in Philly). She spoke with Drew and I for ~ 1.5 hours going over all my history. We talked about the possible drugs to try also. Since I had previously been on Temodar + Avastin and it had showed shrinkage,  then stability, we decided to try that combo again. It was a matter of the known (side effects and results) and an unknown. I know I will try Sutent next, sooner than later if the Avastin/Temodar don't show strong results. 
So I'm back on the pills for a week, then the infusion on the 8th day, off a week, then back on. So far so good. I did get nauseous the first night on the meds despite all the anti nausea meds I also took. Oh well, just my body reacting I guess.
I've also been battling a cold/cough for ~ 2 weeks now. (Carter had croup and I couldn't avoid it) I think I'll be calling tomorrow for an antibiotic to get rid of this infection. 
The other strange health issue I've had is a systemic achy swollen joint, sore muscle pain. I went to an Internist to test for what it could be and my SED rate was 75, normal is 30. The tests came out inconclusive for anything specific, so she referred me to a Rheumatologist. I'll be seeing him late January, as that was the first available!
That's the health update for now! Back to Christmas prep and parties! xoxo

peek at a project... complete!

These are the makings of gift stockings for an Advent Calendar or the Twelve Days of Christmas that I am making. That will depend on if I make 12 or 24! I'll string them up together to hang in number order. I think I'll clothes-pin them to the string, that way the boys can take them down for their surprise!

I got the Idea from Garnet Hill, pictured here:

The one they sell is $78... I thought I could do better. I bought 2 yards of burlap, 2 yards of lining, 14 squares of felt and 2 spools of ribbon for $24. Mine is not as trimmed out, but I think it will end up just as cute! I'll update when I complete the project. 

Here  it is with "12 Days" of burlap and felt stockings, ready to hang and ready for 12 little treats!

one more to make!

do you know Lily and Laura?

Lily and Laura bracelets are handmade by women in Nepal. They are beautiful pieces of wearable art. They are a current obsession of mine. I feel good supporting this business, women helping women make a better life for themselves. This is from their website:

Namaste.  We are the producers of Lily and Laura Bracelets.  Our  handmade glass beaded bracelets roll on over any hand.  Laura and our  women artists in Nepal custom design these creations which are handcrafted in the Kathmandu Valley.  We use the finest glass beads in the world in our bracelets.  Our business focus is to pay more than fair trade wages to our artisans in Nepal thereby improving the quality of their lives while providing you with beautiful, top quality, handcrafted glass beaded bracelets.  All beading is done in the comfort of their homes or on rooftop decks during nice weather.  Our artists also have the freedom to work only when they are inspired.  Please visit our Facebook Page for the most current Lily and Laura Bracelet pictures, bracelets news, and to view our video of how the bracelets are crocheted.  Thank you.

I love designing combinations to wear out of all the different patterns and colors. I'm looking forward to their next shipment to add to my collection!

the last 2 months...

Seems like I've gotten away from blogging... since it's been 2+ months since my last post. So I thought I'd try to look back to see what I was up to. The Shingles took quite a while to get over. The nerve pain and itching lasted about 6 weeks. I didn't do much of anything during that time. My Oncologist took me off chemo and I'm still on a break. I feel normal again! I started back to golf in mid-August and tennis started on August 22. It felt so good to run around the court again. I hadn't played ALTA for the past year because of surgery, radiation and chemo. We've played 2 matches so far and I've won both, hooray!
I flew down to Orlando to visit Kris, Ryan and Nathan and stayed for a week. We got so many projects done! We upholstered her guest room bed, reupholstered a rocker in her bedroom, chalk painted and glazed a cabinet and built a sewing cabinet in her office room closet. It was a productive week and a great visit!
We spent Labor day weekend at the Lake house with Kelly and Carter and Alex. 
I planned, designed and contracted with a company to renovate our master bathroom. Demo to start in ~ 2 weeks. That will be a mess to contend with for sure!
And this past week, in mid-September, we met the extended family in Hilton Head for a week's vacation. What a fun time we had! My husband and the girls and their families, my sister and her husband, my brother and his wife and their daughter and her boyfriend, and my husband's brother and his wife. My Mom lives there too, there were 17 of us in total! We golfed, played tennis, cooked, rode bikes, played at the beach, swam in the pool and hot tub, read books, puzzled, shopped and had a great time together!

This week I was back to tennis and Gal Pal golf, and yesterday I painted baby Nolan's nursery. He'll be here in ~5-6 weeks! I've got quite a bit of sewing to do for his nursery... better get to it!

Shingles

If you've had them you'd shudder at that word. The word means "pain".

It all started last week, probably early in the week, when I felt a slight pain behind my left ear, like the frame of my eye glasses was putting pressure on me. Then on Thursday evening I noticed an ear ache, in my middle ear. I had no congestion and I wondered where an earache could come from. I even thought maybe there was a lymph node putting pressure on my ear. When you have cancer you think like that. By Friday the ear pain was throbbing, coming in spurts now and then. I took a decongestant and some ibuprofen to ease the pain. It didn't really help. On Saturday I noticed a few bites on my neck but didn't remember being bitten. They were extremely itchy and when I touched them they oozed clear pus. By Sunday the rash was in front of and behind my left ear, and by that evening it was all the way to the back of my neck into my hairline. We were home from the lake by then so I put it out on the Sarcoma Website to get everyone's opinion. Three people immediately responded "Shingles". I Googled it and after some research thought they were right. Monday morning I got into the dermatologist who confirmed the rash and told me what to expect and handed me 3 prescriptions. I called my Oncologist who said to stop the chemo this week and just come in for blood work on Thursday. By that afternoon the nerve pain was coming fast and furious. Like no pain I've ever experienced. When I move my head or neck I get a shooting tingly nerve pain that radiates through my whole neck. OUCH!

Another side effect from cancer. I got this now because I am immunodeficient from taking chemo. 
This has got to be the worst side effect yet. 

Sarcoma treatment update

I haven't posted on Sarcoma since my last post in April on my five year anniversary. In March I had come to a conclusion. My current Oncologist had come to the end of his expertise for my unique cancer. He was in touch with the Doctors at Dana Farber over my treatment, but they were still not sure about what chemo to try. I decided to go to Emory and meet with their new Sarcoma specialist, Dr. Movva. Our first meeting, she presented me with a research paper about my exact cancer and the drug combo they were using to fight lung mets. She wanted to use these drugs on me and she had a reason why. I liked that right off the start! So, I switched Oncologists and we started a new chemo protocol in March. I take Temodar pills, 200mg for 7 days and on the 8th day have an infusion of Avastin. Then I get a week off the drugs and start again. I've been doing this since March 8th. I had a PET scan on April 30th that showed shrinkage of the previously growing nodules. It was minimal shrinkage, but most of all hope! So we continued the protocol for 2 more months. After 4 months on the drugs I had another PET scan. The nodules were basically the same size as on 4/30, no shrinkage or growth. I was disappointed in this. I wanted my wonder drugs to attack and kill those nodules down to nothingness! But the good news is I was stable. "Stable" but unstable emotionally because now I had to think further down the road to the next treatment. We are doing the drugs for 2 more months, through the end of August and we'll scan again and assess. If still stable I may get a break to see what happens on nothing. We'll see. That's the hard part, the unknown...